
Self-Management:
Set and Document Self-Management Goals Collaboratively with Patients
- Address medication adherence with standardized training and goal-setting:
- Before beginning HAART, assess patient's readiness for treatment, understanding of the disease, attitudes towards HAART, and understanding of the importance of adherence.
- Review treatment options, patient's lifestyle and dosing schedules, and number of pills to be taken.
- Educate patients about side effects and their management.
- Set realistic therapeutic goals together.
- Avoid unnecessary medications.
- Address other self-management issues that need collaborative goal-setting, such as nutrition and harm reduction. Specific self-management goals may include:
- Disclosure of HIV status
- Safer sex practices
- Entering drug or alcohol treatment programs
- Attending support groups
- Seeking help for abusive situations
- Re-establishing or maintaining a support system
- Returning to work
- Maintaining a stable living situation
- Maintaining body weight
- Preventing or controlling medication side effects
- Assess patients' skill, understanding, and confidence in managing their disease.
- Give patients a copy of their goals, and place a copy in the patient record.
- Review the patient's personal barriers and enablers in order to link daily tasks to positive self-management behaviors. For example, link taking medication with brushing teeth.
- Identify tools that support the following aspects of self-management:
- An HIV goal contract or promise that includes self-monitoring, guidelines for treatment, and an assessment of the patient's confidence level to help with problem solving about barriers
- Steps to overcome barriers
- The patient's confidence level (e.g., on a scale of 1 to 10, how confident are you that you can meet your goals?)
- A follow-up plan
- Review the tool with the multidisciplinary team, including all those who will be involved in its use — physicians, nurses, pharmacists, volunteers, lay health workers, etc.
- Test the tool with a few patients and revise as needed. Retest with additional patients and different populations.
- Identify high-quality patient education materials.
- Review materials for age and cultural appropriateness. Determine if different versions — grade levels, languages, and literacy levels — are necessary to serve patients. Review materials with the care team.
- Test materials with a few patients and revise as necessary.
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